On rare diseases - Europe's challenges More ...
on an action in the field of rare diseases More ...
Rare diseases in EU
Why do rare diseases need specific EU support? More ...
Euro Histio Net has received funding from the European Union, in the framework of the Public Health Programme. More ...
 
» Expert Histio Net » Histio Net » Project Partners  · 

The Partners Of The Histio Net Project

Author(s): E. Schaefer, Created: 2010/07/20, Reviewed by: I. Astigarraga, J. Donadieu, R. Haupt, M. Minkov, R. Price, last update: 2013/11/17

More than 30 international experts and representatives of patients associations dealing with histiocytosis contribute to the Histio Net project.

Coordinator

Dr. Jean Donadieu
Email: jean(dot)donadieu(at)trs(dot)aphp(dot)fr
Reference Centre for Histiocytosis at Hopital Trousseau,
Assistance Publique – Hopitaux de Paris, France - www.aphp.fr

Project Partners - Physicians

Robert J. Arceci, M.D., Ph.D
Email: arcecro(at)jhmi(dot)edu
Johns Hopkins, Baltimore, Maryland, USA
www.hopkinsmedicine.org/kimmel_cancer_center/

Prof. Maurizio Aricò
Tel. +39 055 5662739, Fax +39 055 5662746, Email: m(dot)arico(at)meyer(dot)it
Direttore del Dipartimento Oncoematologia Pediatrica, Azienda Ospedaliero-Universitaria Meyer,
Viale Peraccini, 24, Firenze, Italy

Dr. Itziar Astigarraga
E-mail: itziar(dot)astigarraga(at)osakidetza(dot)net
Fundación Vasca de Innovación e Investigación Sanitarias (BIOEF)
www.bioef.org
Hospital de Cruces, Barakaldo, Spain - www.hospitalcruces.com

Michael Girschikofsky, MD
Email: michael(dot)girschikofsky(at)elisabethinen(dot)or(dot)at
Elisabethinen Hospital, Linz, Austria - www.elisabethinen.or.at
Austrian Working Group for Histiocytic Diseases in Adults

Dr. Julien Haroche
E-mail: julien(dot)haroche(at)psl(dot)aphp(dot)fr
Hôpital Pitié-Salpêtrière, Paris, France
www.aphp.fr/hopital/pitie-salpetriere/

Dr. Riccardo Haupt
E-mail: riccardohaupt(at)ospedale-gaslini(dot)ge(dot)it
Istituto G. Gaslini in Genova, Italy - www.gaslini.org

Prof. Jan-Inge Henter
Email: Jan-Inge(dot)Henter(at)ki(dot)se
Karolinska Institutet, Stockholm, Sweden

Prof. Laila Hessissen
E-mail: lailahsn(at)gmail(dot)com
Centre d'Hématologie et d'Oncologie pediatrique de Rabat, Morocco

Gritta Janka, MD, PhD
Email: janka(at)uke(dot)de
Children's University Hospital, Hamburg, Germany
www.uke.de

Gregory Kaltsas
Laiko General Hospital, National University of Athens, Greece

Claudia Djambas Khayat, MD
Email: claudiakhayat(at)yahoo(dot)fr
Hotel Dieu de France Hospital, Beirut, Lebanon

Polyzois Makras, MD, PhD
Email: makras(at)internet(dot)gr
251 Hellenic Air Force & Veterans General Hospital, Athens, Greece

Dr. hab. Iwona Malinowska
E-mail: iwona(dot)malinowska(at)wum(dot)edu(dot)pl
Medical University of Warsaw, Poland
www.wum.edu.pl

Dr. Mariana Michalowski
Email: mmichalowski(at)hcpa(dot)ufrgs(dot)br
Hospital de Clínicas de Porto Alegre, Brasil
www.hcpa.ufrgs.br

Prof. Dr. Milen Minkov
E-mail: lch(at)ccri(dot)at
Children’s Cancer Research Institute, Vienna, Austria - www.ccri.at

Dr. Vasanta Nanduri
Email: vasanta(dot)nanduri(at)whht(dot)nhs(dot)uk
Watford General Hospital, Watford, UK
www.westhertshospitals.nhs.uk

Carlos Rodriguez-Galindo, M.D.
Email: Carlos_Rodriguez-Galindo(at)DFCI(dot)Harvard(dot)edu
Dana Farber Cancer Institute and Childrens Hospital, Boston, Massachusetts, USA
www.DFCI.org

Mariya Spasova, MD, PhD, Associate Professor
Email: merispa(at)mail(dot)bg
Medical University Plovdiv, Bulgaria - Webpage

Maria Jolanta Stefaniak, MD, PhD
Email: jolastef(at)dsk(dot)lublin(dot)pl
University Pediatric Hospital, Lublin, Poland - www.umlub.pl

Prof. Dr. Stefaan Van Gool
Email: stefaan(dot)vangool(at)uz(dot)kuleuven(dot)be
UZ Leuven, Leuven, Belgium - www.uzleuven.be

Dr. Johannes Visser
Email: johannes(dot)visser(at)uhl-tr(dot)nhs(dot)uk
University Hospitals of Leicester, Leicester Royal Infirmary Childrens Hospital, Leicester, United Kingdom

Dr. Sheila Weitzman
Email: sheila(dot)weitzman(at)sickkids(dot)ca
Hospital for Sick Children, Toronto, Ontario, Canada

Dr. Kevin Patrick Windebank
Email: k(dot)p(dot)windebank(at)ncl(dot)ac(dot)uk
Newcastle University, Newcastle, United Kingdom
www.ncl.ac.uk

Saadia Zafad
Email: szafad(at)hotmail(dot)com
Clinique Al Madina, Casablanca, Morocco

Project Partners - Patient Associations

Artemis Association on Histiocytoses, Greece
www.histioartemis.gr
Contact: Mrs. Dora Moustaka, Email: info(at)histioartemis(dot)gr
and Mr. Elias Baxevanidis, Email: el(dot)baxevanidis(at)gmail(dot)com

Asociacion Espanola contra la Histiocitosis de celulas de Langerhans (ACHE), Spain
www.histiocitosis.org

Association Histiocytose France (A.H.F.), France
www.histiocytose.org
Contact: Mrs. Lydia Debar
Email: debarly(at)voila(dot)fr

Associazione italiana ricerca istiocitosi (AIRI LCH onlus), Italy
www.istiocitosi.org
Contact: Ms. Marisa De Carli, President
and Mr. Franco Sponchiado, Vice-President
Email: onlus(at)istiocitosi(dot)org

Erwachsenen Histiozytose X e.V (EHX e.V.)., Germany
www.histiozytose.com
www.LCH-Register.org
Contact: Mrs. Dagmar Kauschka, Chairwoman
Email: d(dot)kauschka(at)ehx-ev(dot)de

Föräldraföreningen För Histiocytos (Ffh), Sweden
www.histiocytos.se

Histiocytosis Association, USA
www.histio.org

Histiozytosehilfe e.V., Germany
www.histiozytose.org

The Histiocytosis Research Trust, UK
www.hrtrust.org
Contact: Richard Price
E-mail: Richard(at)hrtrust(dot)org

LCH-Belgium, Belgium
www.lch.be

Stichting His­tio­cy­to­se Ne­der­land, The Netherlands
www.histio.nl

The ECD Global Alliance, USA
www.erdheim-chester.org
Contact: Kathy Brewer
Email: support(at)erdheim-chester(dot)org