Rare diseases in EU
Why do rare diseases need specific EU support? More ...
Euro Histio Net has received funding from the European Union, in the framework of the Public Health Programme. More ...
 

Patient Associations around the World

Author(s): E. Schaefer, Created: 2011/05/06, Reviewed by: I. Astigarraga, J. Donadieu, last update: 2013/03/02

This webpage lists patient associations dealing with histiocytic diseases.

 

Asociacion Española contra la Histiocitosis de celulas de Langerhans (ACHE)
Spanish Patient Association for Langerhans Cell Histiocytosis
 

 

As­so­cia­zio­ne Ita­lia­na Ri­cer­ca Is­tio­ci­to­si - AI­RI LCH on­lus
Italian Patient Association for Histiocytosis Research
 

 

Association Histiocytose France
French Patient Association for Histiocytosis

 

Artemis Society on Histiocytoses
Greek Patient Association for Histiocytosis

 

url EHX
Er­wach­se­nen His­tio­zy­to­se X e.V.
German Patient Association for Adult Histiocytosis

 

Erdheim-Chester Disease Global Alliance
The ECD Global Alliance is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. It is based in the USA and has international members.

 

url Ffh
Föräldraföreningen för barn med Histiocytos
Swedish Patient Association for Histiocytosis

 

url HA
Histiocytosis Association
Association for histiocytic disorders based in the United States of America

 

Histiozytose Hilfe e.V.
German Patient Association for Histiocytosis

 

Histiocytosis Association of Canada
Canadian Patient Association for Histiocytosis

 

Patients' Histiocytosis Website
Israeli patients' website about histiocytosis in Hebrew and English

 

Stichting Langerhans Cel Histiocytose
Dutch Patient Association for Langerhans Cell Histiocytosis

 

The Histiocytosis Research Trust
Patient Association for Histiocytosis based in the United Kingdom

 

Langerhans Cel Histiocytose Belgium VZW
Belgian Patient Association for Langerhans Cell Histiocytosis