Rare diseases in EU
Why do rare diseases need specific EU support? More ...
Euro Histio Net has received funding from the European Union, in the framework of the Public Health Programme. More ...
 

Links, News and Events about Rare Diseases in general

Author(s): E. Schaefer, Created: 2010/10/10, Reviewed by: I. Astigarraga, J. Donadieu, L. Debar, last update: 2018/05/27

Eu­r­or­dis Ra­re Di­sea­ses Eu­ro­pe - The Voice of Ra­re Di­sea­se Pa­ti­ents in Eu­ro­pe
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 561 rare disease patient organisations in 51 countries covering over 4000 diseases.
The portal for rare diseases and orphan drugs
Orphanet is a reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.
Foundation for children suffering from rare diseases
The Care-for-Rare foundation was founded so that children suffering from rare diseases can gain quicker access to modern genetic diagnoses and innovative therapeutic methods.