The EU clinical trials register is hosted by the European Medicines Agency (EMA). It is part of EudraPharm, the Community database of authorised medicinal products. It provides information on clinical trials which have been authorised in the EEA or which are part of a Paediatric Investigation Plan (PIP). More ...

Rare Disease Day is an annual, awareness-raising event. February 29th 2008, a "rare day", was the first Rare Disease Day.

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» Expert Histio Net » For Patients » Histiocytoses  · 

When you hear about histiocytosis for the first time

Author(s): E. Schaefer, Created: 2010/10/10, last update: 2011/08/30

When patients are diagnosed with histiocytosis, they start looking for information. An incredible lot of impressions from the world wide web must be sorted out in order to get reliable information.

The Histio Net initiative is meant to provide as much reliable information as possible about Langerhans Cell Histiocytosis and associated syndromes. On these pages for patients you will find lists with frequently asked questions (FAQ) giving information about rare diseases and histiocytoses in general as well as about some of the different histiocytic disorders. The information for kids who want to know more is also useful for grownups who are looking for a plain introduction.