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Histio Net - A reference network for Langerhans Cell Histiocytosis and associated syndromes
We want to join efforts in puzzling about Langerhans Cell Histiocytosis (LCH), Juvenile Xanthogranuloma (JXG), Erdheim-Chester-Disease (ECD), Rosai-Dorfman-Disease (RDD/SHML) and associated rare histiocytoses. Our goal is to determine better diagnostic and therapeutic procedures, to improve care and follow-up, and to reduce reactivations and late sequelae.
In addition, we want to inform about the problems which patients who are concerned by a rare disease have to face. And we want to show the possiblities to find help.