Welcome to Euro-Histio-Net
Objectives
The Euro-Histio-Net project has been brought up to join efforts in increasing the knowledge of Langerhans cell histiocytosis and associated syndromes. Main objectives are improving quantity and quality of knowledge exchange, producing guidelines and setting up an international data base. A web portal will make any newly acquired information available for professionals, doctors and patients.
Improve medical care of the patients
A comprehensive collection of patient data and disease courses in an international data base will help histiocytosis experts to increase the knowledge about the disease, to determine better diagnostic and therapeutic measures, and therefore to improve the patients’ treatment. It will also enable them to constantly improve the contents of the Euro-Histio-Net web portal. Non-specialised doctors will benefit on access to better information and therefore also be able to improve the patients’ treatment. European patient associations will be asked about all questions that were frequently asked but could not be answered by their treating doctors. So histiocytosis experts will be able to answer these questions and to add them to the FAQ on the Euro-Histio-Net web site. Non-specialised doctors will benefit on these answers as well as histiocytosis patients.
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