Links, News and Events about Rare Diseases in general
Author(s): E. Schaefer, Created: 2010/10/10, Reviewed by: I. Astigarraga, J. Donadieu, L. Debar, last update: 2011/10/11
Eurordis Rare Diseases Europe - The Voice of Rare Disease Patients in Europe
News and Events webpage of EURORDIS, a non-governmental patient-driven alliance of patient organisations representing more than 469 rare diseases patient organisations in over 45 countries.
EUROPLAN Rare Disease National Conferences
15 national conferences organised within the framework of EUROPLAN, an EU funded project, to promote national plans and strategies for rare diseases based on EU Council Recommendation, May-December 2010, Europe.
The portal for rare diseases and orphan drugs
Orphanet is a reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.